Just wanted to say as a fellow cluster sufferer that my heart breaks everytime I hear of someone else living through this. I too am on this Depakote/Topamax mix and cannot function. Can't work,drive, barely walk for fear of just plain falling over. Need a new doctor as mine doesn't belive in follow up appts. just new patient ones. Sigh... what a piece of work. Good luck to you.
Beach, Good to meet you, sorry about our heads being defective in the same way.
I hope they don't want you on both of those indefinitely! FYI, in the last few days since being off the Depakote and only being on the Topamax I think the "space cadet" feeling has decreased for me a bit.
Good luck to you as well, all of us with clusters sure do need as much of it as we can get.
Welcome to Doc's cluster headache journal. This is a place for Doc and Katy to keep a record of his cluster headache cycles and any issues related to that. It also will serve as a resource as Katy works on her documentary film project on cluster headaches.
2 Comments:
Just wanted to say as a fellow cluster sufferer that my heart breaks everytime I hear of someone else living through this.
I too am on this Depakote/Topamax mix and cannot function. Can't work,drive, barely walk for fear of just plain falling over. Need a new doctor as mine doesn't belive in follow up appts. just new patient ones. Sigh... what a piece of work. Good luck to you.
By Mary Ann, at 3/18/2008 3:25 PM
Beach,
Good to meet you, sorry about our heads being defective in the same way.
I hope they don't want you on both of those indefinitely! FYI, in the last few days since being off the Depakote and only being on the Topamax I think the "space cadet" feeling has decreased for me a bit.
Good luck to you as well, all of us with clusters sure do need as much of it as we can get.
By Murdock Scott, at 3/18/2008 4:32 PM
Post a Comment
<< Home