Doc's Cluster Headache Journal

Thursday, October 11, 2007

Migrane Morning

Driven awake this morning by bad, slowly throbbing migraine-ish pain around 6am. I kept falling asleep in the lulls for a while but it eventually slowly climbed up to around 4-5 in level which is quite annoying for a migraine. In fact, from my limited experience with them it seems to be about as bad as they get, at least for me. Its hard to really compare them to clusters though because the pain is so different.

Although for me, a cluster attack has a much greater potential for severity of pain, I kinda hate the bad migraines as much due to their long lasting nature and ability to rob me of energy.

Its now 9am and its down to a 1 or so in level.

Annoying waves of pain now and then throughout the day.

At 7:45pm I got a cluster attack while exercising that got up to around a 3 and lasted for 2 hours.

The annoying waves of pain returned after that.


  • I feel your pain. I am so scared to even go to bed just now.. its 12:40 am.. :(

    I thought it was aged cheese that triggered this stuff, but now I have no clue. I simply take the devil for a walk and drop dead on my bed.

    why me.. ok, why us?

    By Anonymous Anonymous, at 10/15/2007 11:44 PM  

  • anonymous,

    The "fear" of sleep has been a growing problem for me. I just don't wanna be asleep when a bad headache comes and for me thats nearly every night for long stretches of time.

    I explain it to people by saying I am like one of Pavlov's dogs. I fall asleep and terrible things happen so... subconsciously I have been trained to avoid it.

    As far as triggers are concerned, I think I would feel very lucky if I had only a few identifiable triggers. I have largely come to the conclusion that I have a large number of triggers but that also the headaches don't need triggers to come, the triggers only make them somewhat more likely and painful.

    I hope we both feel better, and get some rest soon.

    By Blogger Murdock Scott, at 10/17/2007 9:47 AM  

  • Cluster Migranes! ooooh.....they are in a league of their own when it comes to serious pain. Not having an sttack of the worst pain I believe any human would not want to experience, the Cluster "f" ers are back in my life after 12 years.I have had 25-26 in the last two and half weeks. Imitrex shots are the only thing I have found to shorten the cruel pain. nothing has changed after all these years for treatment or answers?? anyone out there know of something better?? Just waiting for them to leave my life!

    By Anonymous jjk, at 5/06/2008 7:16 PM  

  • jjk,

    Oh man! You were rid of them for 12 years and now they are back!? That sucks! I am so sorry.

    "nothing has changed after all these years for treatment or answers?? anyone out there know of something better??"

    Here are a few things I might mention... keep in mind I am not a doctor, just a guy with headaches. Please discuss any treatment with your doctor.

    I have been seeing a very up to date neurologist at a well respected pain management clinic in Dallas and she has been trying preventatives like Depakote and more recently Topamax. This class of drugs have long been used to treat epilepsy which is pretty interesting.

    Look for newer posts on my blog relating to them.

    Also, many people swear by a "natural" fungus that people have been using as a recreational drug for a very long time. I have not tried this for my own reasons and I don't really recomend it... But it does sort of make sense. I consider it dangerous because there has been very little serious study on its use but you will hear about it eventually so it might as well be from someone urging caution. : )

    One more thing, Imitrex has caused some folks serious problems. Make sure your doctor is confident you are still heart healthy and don't over do it on those injections.

    Look for the Cluster Headache Worldwide Support Group and OUCH links on my sidebar and visit or at least lurk those sites if you are not familiar with them, sometimes it can be a little intimidating to start posting over there, but they are good people... just in pain like us. Kinda makes for a weird social dynamic sometimes as you might imagine.

    Good luck my friend, I hope these leave and you get another 12 year remission...

    By Blogger Murdock Scott, at 5/06/2008 8:41 PM  

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