June 21, 2004

Were I not bizarrely superstitious about this whole thing, I might HYPOTHETICALLY say that the cycle is over... but I can't ever really say that or I'LL JINX IT!!!

June 12, 2004 :: 4:30 a.m.

Ow. I was going to be funny but it's really starting to hurt...

Solid 3, feels like it may hit 4-ish.

Worst one in several days. I was hoping they were mostly over... SURPRISE!

Ow! Worse still, definitely a 4 now. Crap, I am starting to make noise involuntarily.

June 8, 2004

Nighttime CH seem to be not powerful enough to wake me now. Although this could be due to exhaustion in part. Since I have not been waking fully I have started to sleepwalk.

Hard to say if drugs are helping or if cycle is just winding down.

June 6, 2004 :: 4 a.m.

Woke with mild cluster (3-4 at about 4 a.m.)

I have been off the Vioxx for 2 days now. I was dubious of its effect (if any) but since I have been off it, I have felt near constant low grade cluster pain.

This is part of the "stupid" feeling I usually have during a cycle, I think. It seemed I was much more alert and in better spirits for the 10 days I was taking Vioxx. Even though it did nothing for any cluster over a 1-2 (that I could tell), it seemed to help the "long & low" ones that have been common in the last few years.

So maybe it's like really good Aleve.

Effects seem to be zero.

I will fill the optional prescription that Dr. Aronoff gave me. If it works as I suspect it will be a great help to at least feel better between teh severe ones.

Had a 1-2 at about 3 p.m.

June 5, 2004 :: 3 a.m.

Got one at 3 a.m. that lasted all day long. It ramped up to maybe 2 at about 12:30 p.m. But it continued all day.

June 4, 2004 :: 3 a.m.

REALLY bad one at 3 a.m., a 7 or 8. It lasted until almost 6 a.m.

Then a lower level one, 1 or 2, about 11 a.m.

Stopped taking Vioxx today.

June 3, 2004 :: 4 a.m.

Had one at 4 a.m., a bad one, 6 or 7.

Then another at about 11:30 p.m., not as bad, maybe a 1.

June 2, 2004 :: 8 p.m.

Got one at 8 p.m.

June 1, 2004 :: 3 a.m.

3 a.m., started out as a 2-3 but got up to a 5-6.

Then again at 9 p.m., a 3 or 4. We took night vision photos of Doc sucking on the oxygen hose.