Doc's Cluster Headache Journal

Sunday, August 17, 2008

I am still having headaches in the morning.

Almost every morning when I wake up I have a headache usually not that bad, (for me) level 2-ish. Most of the time these disipate withing 30-45 min after waking, almost like being asleep was the cause. Sometimes they stay with me for the rest of the morning and rarely they can last all day. They are normally in the migraine area and have the characteristics of that type of pain.

The day before yesterday. I slept for longer than usual (7 hours) and woke with a very bad headache that lasted much longer. I am trying to get back to a schedule of sleeping a full nights sleep each night but if I continue to wake up in such pain each morning I am afraid I will have poor motivation to do it.


  • This comment has been removed by a blog administrator.

    By Anonymous Anonymous, at 9/04/2008 1:49 PM  

  • Reposted with marketing info redacted by blog owner.

    anonymous said...
    I would look into getting a ***Product Name*** to sleep. Lots of people grind their teeth (needs citation) during the night and it can cause headaches and jaw pain.(needs citation) I(person?) discovered that website with great treatment tips and a suggestion for a comfy(marketing language) ***Product Name*** - ***Direct website reference***.

    By Blogger Murdock Scott, at 9/04/2008 3:00 PM  

  • I never mind people sharing experiences and tips. This person could have simply said "have you checked tyo see if you grind your teeth when you sleep?" and I would have said yeah, sure did... long long ago.

    but thats not what happend here... product names were used, websites were tossed around, the term "comfy" slipped in.... come on, who would use the word comfy to describe something you shove in your mouth at night and yoink out in the morning caked with spittle?

    only one class of person... and they are the same people that don't bother to read your blog and realize you have a serious condition that has be ongoing for nearly 2 decades. Their are a multitude of places to post information for people with bothersome but perhaps less debilitating conditions. Those of us with Clusters and numerous Migraines would appreciate being treated with a bit of respect given to the pain we are in and not having it trivialized by marketers that don't take the time to understand the sites they are on or the people they are speaking to.

    In the very small off chance that the poster was an actual suffer, please understand how your post could be perceived. But in all candor... I don't think you could convince me that you were not someone who was working to market the mentioned product.

    By Blogger Murdock Scott, at 9/04/2008 3:00 PM  

  • Having said all that, if you are new to the headache game talk to you dentist kids! Its like step number 3 or 4... you don't need to buy some ill fitting crap at the store and guess about it being a cause of headache. They can actually look for the evidence, talk to you about the type of pain you are having and fit you with the real deal if you both feel it may be a cause... thats what they are trained for. WooHoo!

    By Blogger Murdock Scott, at 9/04/2008 3:09 PM  

  • Hi. I've had migraines for over 20 years and have tried the dentist night gaurds. Stupidly I've had 3 made. My last dentist, my sister in-law works for, was convinced he could "cure" my migraines with the night guard. No go. I tried the NTI gaurd and my back mollars could still touch and grind. And actually, with the mouth gaurd it seemed I would clench worse. Bruxism is tough to treat. I have not seen any good treatments for it. I am sorry you are having such a tough time and can relate to your posts on how migraine has changed who you are. Living with a physical illness is hard. I slog through work and then try to have energy to do chores at home and then have a relationship with my husband. I feel like most days I am losing the battle. The magnetic zapper sounds awesome. Sure seems better than all the drugs I am taking. I hope it comes to market soon and doesn't cost a fortune.

    By Anonymous Anonymous, at 9/12/2008 8:48 AM  

  • anonymous,

    This is my usual greeting, "Its good to meet you, but I am sorry that we have this in common."

    Thank you for your words of support, just taking the time to type something nice on my blog means more to me than you may know. : )

    Sometimes I think many dentists are over ambitious about treating headaches to be honest, but I say give them their shot. I am Sorry it didn't work in your case. I bet it doesn't more often than not though.

    But then headaches are such a hard thing to pin down, people may have trouble accurately describing it, hell I still do even after all this time. If the dentist thinks they can help, then it's an avenue worth exploring I think. We all do Much crazier stuff on the road to trying to get rid of our pain. (whisper: as a fellow long time sufferer don't tell the newbies that they just have to sorta deal with it to some degree, it really freaks them out.)

    So, are you saying that you know for sure that you grind your teeth but the devices have not helped the headaches at all? That would not necessarily surprise me because if you have migraines then I don't think they would be related to the issue of grinding teeth... that would be another form of headache wouldn't it? "TMJ" headaches? I think there is some discussion on wether Bruxism sometimes triggers migraines or whether the headaches are mostly TMJ related. Sounds to me like your dentist thought yours were all TMJ related and was wrong.

    I'm pretty sure thats what you are saying in your post I am just wanting to be clear since it's not something I have gone through personally. My dentists and doctors have discussed it several times, but since I showed no evidence of having a problem with it, thats as far as it went. Especially since I have clusters and thats hard to mistake for anything else.

    I am wondering if you may have had pain from both? Migraines and Bruxism related headaches? The reason I say this is that I am finding out more and more recently that people who get headaches often seem to be susceptible to many types of headaches (something I have suspected for decades) which leads to confusing diagnosis!

    Me for example, I am "lucky" in that I get clusters and now migraines and they like to play ping pong on the two sides of my head. heh.

    I am convinced that the underling problem for people who suffer greatly from severe headaches lies deep within the brain. The more scientist uncover on the subject the more this seems to be supported. Thats why the magnetic pulse research is so exciting to me also, I really hope that pans out.

    Well, I hope you visit back, I would like to know more about your experiences.

    I love hearing from people and getting new insight, thanks for coming by and I hope we both feel better soon.

    By Blogger Murdock Scott, at 9/12/2008 12:14 PM  

  • I found it helpful reading your blog and seeing there are other people out there experiencing the same things as me. It's such a stange and completely debilitating illness and one so many people don't have a clue about it can be a very lonley existence. I started getting cluster headaches in 1998 and seemed to get one cluster every year which lasted about 2 months. In 2004 I found Verapamil and this worked for me. It controlled the clusters and for 6 years I only got a handful of migraines each year which was completely manageable. Unfortunately I had to come of them in 2009 due to some side effects and I am now currenlty back in a cluster. I had forgotten how bad things could be! The Dr has put me on Topiramte 100mg daily but it does not appear to be working as I am still getting nasty headaches at least every day. I have told the Dr to put me back on the Verapamil. I will take any side effects over these headaches at least life could go on then!

    By Anonymous Anonymous, at 5/06/2010 10:06 AM  

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